PSPA is the only UK charity dedicated to creating a better future for everyone affected by PSP & CBD.
We work to ensure the 10,000 people with PSP or CBD receive support and care that is co-ordinated, has continuity and is compassionate.
Our Goals are to:
Enable people living with PSP & CBD and their families to live their best lives possible with high quality support and information
Improve the quality of life of people living with PSP & CBD through research, education and awareness raising
Put the voice of people living with PSP or CBD at the heart of what we do.
Our commitments apply to everything we say and everything we do.
To be courageous in making sure the voices of people living with PSP & CBD are heard. Standing up for a better life for people and having a tenacious commitment to change, even in the face of setback
To be ambitious – to be the leaders in the field of PSP & CBD in the UK. To be willing to listen and learn and to strive for excellence and impact
To work collaboratively, to inspire people externally and internally, to bring their individual talents together to improve outcomes
To respect, value and recognise everyone’s contribution. Empowering people and building a team which champions Equality, Diversity, and Inclusion.
PSPA is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. We rely entirely on voluntary donations.